Saylor Graham was born a fighter. The 7-year-old from Bend has an ultra-rare gene mutation disorder known as CASK, which comes with a wide array of physical and cognitive challenges.
Living with CASK, which affects brain development, “is full of unknowns, which can be very hard and scary for my whole family,” Saylor, who does not speak, wrote in a December 2024 video, “but it doesn’t keep me from smiling, laughing and living with joy!”
Read more at the link in our bio.
📷: mark_w_graves
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